5 Tips to Avoid Neuro-Fatigue

20 thoughts on “5 Tips to Avoid Neuro-Fatigue”

  1. Thanks for this article. I struggle with having lower energy since I had a stroke in December 2015. It’s easy to forget this and try to do all the things I used to do in the course of a day, only to run out of steam before I’m even halfway through my list. It’s good to be reminded that this is par for the course and that not only is it okay to take things slower, it’s actually a good thing to do! Also, I’ve never liked crowds, but now I really dread them, partially because of my inability to hear and focus in one place, but also because I walk with a cane, and it’s too easy for people to knock me over. I plan to save your article so I can reread it when I feel overwhelmed and underpowered!

    1. I’m glad that my article was helpful to you! I have found that learning to pace myself to avoid neuro fatigue has been one of the hardest parts of the recovery process. Even when we take all the precautions to not let it happen, sometimes at least for me, I know it sneaks up on me before I even realize it’s coming! I totally relate to now being about to focus myself when there is a lot of noise around. It all just clumps together and becomes background noise, so I have to strain to focus which of course doesn’t help the situation. I have found that earplugs do help with this somewhat. I can also understand how you feel about going out places, I was stuck inside for so long , and had a hard time when I first started getting out of the house with my walker. It was super hard for me to use since I have lost depth perception in my vision. Not to mention the mental/emotional part of being embarrassed at being seen using the walker. I’m over that now and grateful to be able to get out and about even if it is hard. It still causes me anxiety depending on where I’m going and what I’m doing. I just keep trying to be positive, thinking about how it wasn’t long ago I would have done anything to be able to get up and go outside! Thanks so much for reading and commenting!

    2. I was injured at work in 2015 when an overhead lamp came loose, swung down and hit me on the head /neck, knocking me to the ground. I am in sweden and there is no protection here for work accidents and things like this !

  2. I love this. I had a CAD & VAD leading to multiple strokes in 2011 & I still feel this. Its hard to explain these things to the people around me, they just think I don’t have stamina & I need to work on having that energy back. it’s like I have my wits & then bam! I’m slurring my words, dragging my feet, my one eye starts to wonder out of sync w the other & im ready to fall asleep right then & there! Lol it’s a messy scene! It’s nice to know I’m not alone & this could be why I get so exhausted in a snap. Thank you for sharing your experience & what y u do to lessen the fatigue.

    1. I think one of the hardest parts of TBI is just dealing with the fact that people just don’t understand what it is like. I have tried to explain it to no avail. It is just something you don’t understand unless you are living it. Thanks for taking the time to comment! Sending positive vibes your way!

      1. Oh yes. I’m 10 months post surgery to remove a benign tumour. As someone on this site commented, people can see a broken leg, but you can’t see brain injury. I went to the pub (I’m in the UK) last night. It was good to get out and be with people but could only manage an hour. Sometimes feel afterwards as if I sat there like a grinning idiot as I find it hard to follow conversations and by the time I’ve thought of a response, the conversation has moved on!

        1. I have the same problem in groups of people, I can’t comprehend or keep up very well. It was especially humiliating last week, we have summer riding camp at our farm and the kids you know are so excited and are all talking to me and asking questions at the same time, it was kind of humiliating not being able to communicate with them normally. I couldn’t help it though, it was so much and my brain couldn’t process it all. It was not just physically exhausting, it was mentally exhausting as well! Thank you for sharing your experience!

  3. Thank you! I have had two brain tumors removed. Both were begine thankfully but in a place that could have caused death at any time. On top of that, my body likes to over produce scar tissue so after my second surgery the n.s. said he spent as much time clearing scar tissue as he did getting the tumor. I am much better 5 years out but still have major issues with crowds, esp if I am tired. Right after surgery I reminded myself of the robot #5 in “Short Circuit”. If there was too much “input” it literally felt like my head was spinning and steam was coming out of my ears. Lol as a matter of fact, after the first surgery my kids were preteens and teenagers. They and their friends would often hang out at our house. Sometimes it got to be too much and all I would have to say was “my head is spinning” and you have never seen teenagers move so fast. Lol

    1. I’m so glad to hear that you are doing better. It really is a journey through recovery and only those of us living it can truly understand! Thank you for sharing your experience!

  4. Hi,
    My youngest daughter had a serious CAD almost 2 years ago. She does her best to cover up the lingering effects, but those who love her the most can see when her neuro-fatigue starts kicking in. Since she has always been such a high voltage person, it is obvious to me when she starts slowing down. Your article helps me to understand what is going on, and will help me be a better father from now on.

    1. I’m glad that it helped you! It really is a hard thing to try and describe to people. It is a feeling that you can’t really explain until you feel it yourself. I’m so glad your daughter is doing well, she is lucky to have such a great support system! Thanks so much for your comment!

  5. Thank you Ellison for bringing me back on track with your Dot Points of wisdom. I have a TBI from being severely rear-ended back in 2012, and i do push myself when i need to. However, now I allow for a rest day following, to help recharge physically and mentally. Since 2012, I’ve been gathering TOOLS to put in my TOOLBOX that help me with my neuro-fatigue. With your permission,
    I’d like to share one of my hard-won battles of pacing myself.

    Meditation only seemed to work after I purchased a pair of BOSE Noise Cancelling headphones. The first time I turned them on, my brain suddenly said thankyou for turning all the normal everyday noises from a 10/10 to a 3/10. WOW!, what a treat for my brain!!! Now sometimes i walk around the house on my REST DAYS with them activated and with no music being played. It feels better than the high from chocolate or winning a meat-tray raffle. The only way I have accepted that I need to pace myself and reinforce it positively, is with an affirmation that I worked on to encourage myself, which is … ” I am being productive when I rest. ”

    Denile is not a river in Egypt, it is one of our greatest challenges that one day we must face. Once we do accept that by resting we are being productive, we actually start becoming less hard on ourselves, and we can see the glimmer of hope that we can do, just that little bit more. Please feel free to take this down if it is too much.

    1. I love it! I think you put it into words so well! We just have to take things day by day and not be so hard on ourselves. I try to remind myself all the time that, my very best is all that I can do. My yoga instructor reminds me all the time that resting is helping me heal, it is not something to constantly avoid or try to push through. Thank you so much for sharing your experience!

  6. I too struggled with neuro fatigue for over 10 years after my brain injury. I am happy to say that it is a thing of the past. I started taking some new supplements 10 months ago and my neuro fatigue is gone now. The supplements contain prehistoric organic plant compound found 300′ underground. Amazing products that help with all kinds of things.

    1. That is so encouraging to know that it will go away with time! Even if it takes 10 years, I will be grateful when it is a thing of the past for me. That is super interesting about the supplement, I will definitely have to look into that. Thanks for the info!

  7. I need to show this to my doctor and the neurologist she sent me to. They put through numerous tests, but never figured out why I would suddenly need to sleep. Also, going grocery shopping and dealing with the crowds in narrow aisles while trying to make decisions is exhausting. I now subscribe to one of those shop and deliver services, and it really helps.

    1. I know what you mean, sometimes the doctors don’t even understand! The grocery store is definitely one of the worst places for me also. That is a good idea to do the delivery service. We do hello fresh, so our ingredients come ready to be cooked. Then my boyfriend just runs to the store for little stuff in between! There are so many aspects of life that TBI effects that you don’t even realize it would effect until you are living it yourself.

  8. I’m glad that I stumbled on this piece, Ellison. Great to read more from you, since we “met” on another site. You’ve offered up some great insights and info for folks- keep it up!

    Looking forward to more from you and keeping in touch.

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